tag:blogger.com,1999:blog-3494278500717046387.post2915025181941202669..comments2023-12-24T06:27:18.038-05:00Comments on Mastering the Art of Breathing, One Stitch at a Time: Lack of O2 Makes Ya Think!Amyhttp://www.blogger.com/profile/12354849302798817593noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3494278500717046387.post-9554103683689026412011-06-15T17:48:55.378-04:002011-06-15T17:48:55.378-04:00Hi, I came across your blog from cf2chat and read ...Hi, I came across your blog from cf2chat and read it every now and then. Just wanted to say that if you can get over the oxygen in public issue it may be a huge help for you as it was for me and greately helped my quality of life.<br /><br />I was in the same position 5 years ago, I desat quickly compared to others with same or even lower lung function. I think I trap a lot of air which causes my stats to drop with any time of exertion. You definitely want to keep your o2 above 90 if you can because it puts so much stress on your body when it is lower and also bacteria can thrive in a low 02 environment.<br /><br />Oxygen has helped me out tremendously and I wear it 24/7 even maybe sometimes I technically don't need it when watching tv or something, but it is second nature now I have been maintaining well since I started using it and going out walking, shopping, etc etc is no problem.<br /><br />I would recommend a homefill system, which is what I use. It is from Invacare and you can fill tanks up at home from your concentrator. They fit nicely in those small camel backpacks that are made to hold water for hiking or what not. It allows for the most independence in my opinion and are much lighter weight compared to the portable concentrators. If you are going to be out all day, you can have multiple tanks with you and swap them out.<br /><br />Anyway, take care and good luck.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-1539393411982832732011-06-08T17:41:08.327-04:002011-06-08T17:41:08.327-04:00Great job on the exercise!! And I hope you end up ...Great job on the exercise!! And I hope you end up being at peace with whatever time frame you/your doctor decide on for the transplant :)<br /><br />RonnieAnonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-814246124387693172011-06-07T20:37:12.767-04:002011-06-07T20:37:12.767-04:00Thanks Jamie. Yeah I know about the heart. It ac...Thanks Jamie. Yeah I know about the heart. It actually scares me that my hear rate is above 100 most of the time, unless I am sitting on the sofa doing nothing. That is one of the tests I am actually looking forward to, to see if my heart is ok. <br /><br />LOL I definitely don't want to wait till the last minute ;)<br /><br />Thanks for the post <3amybraidhttps://www.blogger.com/profile/09797586185811011310noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-82608252928083238292011-06-07T10:55:29.233-04:002011-06-07T10:55:29.233-04:00It is a bittersweet realization. Also just to add ...It is a bittersweet realization. Also just to add another reason to wear your oxygen to keep your sats up: Your heart has to work much harder to pump blood faster in order to compensate for lack of O2 in your bloodstream. I was one of those who procrastinated using my oxygen and the result was an enlarged heart. My resting heart rate was easily over 125. My heart was thankfully not too damaged & repaired itself after my transplant. <br /><br />Everyone is so different and CF is so individual. If you feel like an evaluation is right for you now, then do it! Better to be prepared than those of us who wait till the last minute ;)Jamiehttps://www.blogger.com/profile/16443223033562968398noreply@blogger.com