tag:blogger.com,1999:blog-3494278500717046387.post4590107681340005609..comments2023-12-24T06:27:18.038-05:00Comments on Mastering the Art of Breathing, One Stitch at a Time: Clinic TodayAmyhttp://www.blogger.com/profile/12354849302798817593noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3494278500717046387.post-70367265542336263522008-09-28T14:31:00.000-04:002008-09-28T14:31:00.000-04:0042%?! well crap, that just means I have to work HA...42%?! well crap, that just means I have to work HARDER to keep up with you...one percentage point to go (I think I can, I think I can). <BR/><BR/>Great news Amy - tx is a few years off yet!!!<BR/><BR/>btw, if you're gonna use that o2 at night, you better get used to those sinus rinses again - otherwise you're nostrils will be crusted shut with dried out, gloppy goo (appetizing, huh?).whatsherfacehttps://www.blogger.com/profile/02767972427264230975noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-25114123293232964012008-09-25T21:09:00.000-04:002008-09-25T21:09:00.000-04:00Amy,I'm SO glad your numbers are up. My docs didn'...Amy,<BR/>I'm SO glad your numbers are up. My docs didn't even mention transplant to me until my fev1 was in the upper 20's. <BR/>Hooorayyy for 4 day work weeks, weight gain, and I'm glad you will be on some O2 at night. It should make you feel more rested in the AM.Christyhttps://www.blogger.com/profile/07257412116217529657noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-30573272436776151502008-09-25T18:33:00.000-04:002008-09-25T18:33:00.000-04:00Glad to hear you had a good clinic visit. I alway...Glad to hear you had a good clinic visit. I always wonder what my docs criteria for tx is too, but at the same time I want to avoid the question.<BR/><BR/>Again Yay for good clinic visit!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-35662417015744073532008-09-25T15:06:00.000-04:002008-09-25T15:06:00.000-04:00Maybe the weight gain was all of the good food at ...Maybe the weight gain was all of the good food at Disney? LOL Anyway, congrats on a good appt. I'm glad to hear you are trying the O2. I hope it makes a difference in how you feel.<BR/><BR/>StaceyJust mehttps://www.blogger.com/profile/17924805774892240310noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-68358126217477936832008-09-25T00:09:00.000-04:002008-09-25T00:09:00.000-04:00Don't you worry, you'll hate O2 soon enough.(alway...Don't you worry, you'll hate O2 soon enough.<BR/><BR/>(always the bringer of positive thoughts, I am)<BR/><BR/>I hope you don't wake up strangled by the tubing...as I often do. I beleive it's a message.<BR/><BR/>best of luck to you deary!!!!Breehttps://www.blogger.com/profile/09091531660961094969noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-73632156689880423052008-09-24T23:05:00.000-04:002008-09-24T23:05:00.000-04:00Good your numbers are up! It sucks having to do th...Good your numbers are up! It sucks having to do the O2, but you will feel more rested using it!Heidihttps://www.blogger.com/profile/07791278701579085418noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-78780002686666648192008-09-24T19:38:00.000-04:002008-09-24T19:38:00.000-04:00Great news! Super glad to hear you got the O2 issu...Great news! Super glad to hear you got the O2 issue worked out... now you can join our oxygen cystics club!Piperhttps://www.blogger.com/profile/01992462169607238118noreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-83981770091709998312008-09-24T13:52:00.000-04:002008-09-24T13:52:00.000-04:00Wonderful that the numbers are up. I am somewhat s...Wonderful that the numbers are up. I am somewhat surprised he wouldn't be more forthright about whether you need to initiate the tx wait or not. I guess some docs are different. Not a subject you want to wait too long on though, right? <BR/><BR/>Good luck whatever happens on that front.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-39115661380785920882008-09-24T13:11:00.000-04:002008-09-24T13:11:00.000-04:00Yay! Congrats on the good numbers!Yay! Congrats on the good numbers!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3494278500717046387.post-53041634568394236632008-09-24T12:36:00.000-04:002008-09-24T12:36:00.000-04:00Glad that it went well!!Glad that it went well!!Lisahttps://www.blogger.com/profile/17766422197931332768noreply@blogger.com