Mastering the Art of Breathing, One Stitch at a Time

Out of my hiatus just to write about this movie.  We knew it would happen ;)  I went to see Five Feet Apart today.   By myself.   I ha...

Monday my Aunt passed away.  She had pancreatic and liver cancer.  The past two months she has been hospitalized and this was expected, but ...

I had my 3 month clinic appointment yesterday.  I can't believe I survived 3 months without a call in there somewhere. All my numbers ...

Last weekend P and I decided to take a drive.  It was New Year’s weekend and with three days off, he was starting to get bored and I was re...

Tomorrow is the big day for me.  I am scheduled to start taking Orkambi.  And it got me ransacking my home looking for things that have 20g ...

Today I had my follow up appointment at MGH after my 2 weeks in house for IV antibiotics.  Today's appointment was actually my 3 month f...

I had a sick visit clinic appointment today.  Recently I have been more short of breath and have been having some lung pain.  And since I am...

Guest blog post up on the Cystic Fibrosis Foundation's new blog!!! My Decision to Stop Working I will be doing another one in a few ...

I have discussed this before, but now that reality is happening.  Orkambi has been approved and is available to those with DDF508 mutations....

My Kidneys.... I am not quite sure what is up with them.  Or if it is even them causing me issues. Back in March I had a BAD UTI.  So ba...