It's That Time Again

Yup it is time for IVs!!!  This way I will feel fabulous (or as fabulous as someone with my lung function can lol) for Christmas and visiting my family.

I blew some really shitty numbers today.  FEV1 of 28%, .85L ha!  Last time, Sept 17, I blew 1.11L, 36%!!!  Holy drop batman!!!  I haven't seen numbers like that since I did the Vertex study in Jan 2011.  I was glad to see them so low because then she wouldn't suggest Cipro and Prednisone first.  She did get an Xray done to make sure I didn't have a collapsed lung or anything like that.  And I don't think I do or I would have heard back by now. 

BCH and BWH made some changes and all CF patients up to age 35 have to be admitted to BCH unless they are listed for transplant or already transplanted.  Luckily for me, I am technically listed for transplant even though I am inactive on the list.  Seems weird to say that.  But that means I can stay at BWH and not get used to another new hospital.  Yayyyyyyy!!!  

So it looks like tomorrow night I will be admitted and then I can be home on Monday, just in time to finish up my grad class.  Lots of editing of my paper and crocheting will get done!  Plus I starting getting a new magazine so I have 2 of them to bring with me.  I won't be bored that is for sure!

Crochet Sale for the Holidays

I have a few pieces of inventory I am selling on SALE for the holidays.  If you are interested just post under the picture of the piece.

Crochet Cyster's Crafts

Plus it will help us pay for our wedding!!!

Merry Christmas!

Christmas has been one hectic holiday this year!  I offered up our home to host dinner and while it was an awesome meal and great having everyone here, it took its toll on me!

Sunday I started running a fever.  101.1 which is pretty high even for me and my night time fevers I get.  I didn't take anything so I could see if it would wear off over night.  While it didn't disappear, it at least came down to 99.1.  However, after being awake for almost an hour it rose to 99.5 so I took some Motrin.  That kept it down till early evening when it started creeping up again.  I took more and I have been fever free since.  The only time I felt bad was when I had the 101.1 fever.  I felt crappy for about 2 hours before the thermometer even showed it.  It kept reading between 98.0 and 98.5 and I kept swearing I had a temp.  See, I knew what was up!

Emily and I were supposed to leave for PA yesterday too.  At first I was very disappointed on Sunday when I heard there was a blizzard coming and the chances of leaving Monday morning were going to be zilch.  It ruined my morning and part of the early afternoon.  But looking back, maybe something/one knew about those fevers coming and decided the only thing keeping me home to rest would be an act of Mother Nature.  We all know, fevers don't keep me down!  I would have left and possibly made myself worse.  So this blizzard was a blessing.  Instead we are leaving in about an hour.  Our bags are packed and once I shower I can pack the van and we can be on our way.  I'm looking forward to spending a few days with my family and seeing everyone.  Plus I can't wait to give out gifts!  We will be home late Thursday night, just in time for New Year's Eve with my honey.

Here are some pictures to see of our hectic holiday: