Today I had an appointment with my new gynecologic oncologist for my Lynch Syndrome. She is awesome and if any of you need to see an oncologist for lady parts I recommend her at Dana Farber in Boston (just send me a FB message!).
I really had no idea what to expect but I knew that one question I had was about a hysterectomy. I've gotten the run around, kind of, whenever I ask about it with other doctors. Even my regular OB-GYN was a little hesitant to say yes go for it. Totally understandable it is a HUGE choice to make. But I also wanted to hear from a doctor that deals with cancer regularly. Someone who would be able to say yes you are a good candidate or no you should wait a few years. Someone who would take into account the CF aspect and not my age. Yes I am young to be totally taking away my chance to have a baby. However, given the set of genes I was dealt, I don't think I want to risk passing it on. As much as I would L-O-V-E to have a baby it is not an option. I won't bore you with the intricacies as I have posted many times about it. And something I have been thinking about since my diagnosis almost 2 years ago.
When I mentioned I was thinking about a hysterectomy she immedicately jumped on board with it. She actually just recently performed one on another CF patient! That eased my mind a great deal to know she has dealt with a CF patient before. She completely understood my concerns, my excitement, my questions and my slight hesitation. I've asked other CFers that have had this procedure done so I was able to ask some other things about afterwards, sex, hormones etc. Nothing is as scary as I had thought, and the whole thing is done by laproscopic surgery. That means I will only have a small 1-2 inch scar on my abdomen! I can deal with that!
I was caught off guard when they came in to schedule the surgery! I was so used to hearing, lets talk about it another time, that I hadn't expected to walk out of there with a tentative surgery date in place. Works for me though as I know I want to get things scheduled so when I have to make my transplant consult I will know my free time. And this also takes 2 questions off of my transplant list.
So all in all I was quite happy with my appointment today and am looking forward to a period free life in just a few months!