I am not quite sure what is up with them. Or if it is even them causing me issues.
Back in March I had a BAD UTI. So bad I was peeing purple....yes PURPLE. I should have taken a picture it was so weird!!! Even the nurse and doctor commented they had never seen pee that color. Fabulous. I got an Rx for Bactrim and within 36 hours my pee was normal again. I was on a study for colon cancer and contacted my study coordinator to let her know. I thought this was my first UTI. Turns out it was my NINTH. I never knew about the other ones because they were discovered when I was inpatient and they cleared up with the IV antibiotics I was given for my lung infections.
So no one ever told me about them. I had a feeling something was going on because each admission I would have to do 2-3 collections since the first and sometimes second would have microscopic blood in it. But no one ever told me they were UTIs. For 3 freaking years I have been having them!!!
Fast forward to my MGH appointment in June. We had discussed doing a 24 hour urine collection to get an idea of how my kidneys are functioning especially since I am no longer taking IV Tobra. So Monday I start the collection. I had been feeling like I was getting a UTI since it felt a little funny to pee but I just ignored it. Monday night, more blood in my urine. So I am freaking out that I will have to re-do the dam collection again (I had done it on Thursday not realizing the place I had to drop it off was closed Friday!). I called my CF clinic Tuesday and she said not a big deal it actually helps because then they can see what is going on better. And then I called my PCP to go in and give a sample and get more Bactrim.
Now this is 2 UTIs in 5 months that have visible blood in them. My thinking is that I am usually getting them but I go inpatient for IVs before the visible blood starts. But now I am going on 6 months without an admission so my body isn't getting the drugs to combat them. So I pee blood. March's I have no idea what that was all about.
Hopefully the 24 hour collection will reveal something about what is up with these infections. They are not fun at all. And I cannot figure out a cause for them. I just hope it isn't anything serious. My mind is obviously thinking my kidneys are failing or I have UT cancer since that is part of Lynch. But my fingers are crossed its something silly that can be fixed easily.