Yesterday I started my new exercise routine. My awesome Cyster Tara sent me to this great site…it’s called couch to 5k. GREAT program! It might take me a bit longer than 2 months to get to 5k but dang nab it I WILL get there!!!

Can I tell you just how AWESOME it feels to JOG on the treadmill?!?!?!? The first week calls for 5 minutes of brisk warm-up walking followed by 60 seconds of jogging and 90 seconds of walking for 20 minutes. I can do 60 seconds of jogging and usually do 2+ minutes of walking to get my heart-rate and O2 sats back. My HR is getting kinda high – maxing so far at 160+ and my O2 has dropped as low as 84% while jogging. Obviously I need supplemental O2 when jogging. I will have to call and ask about that this week. I have my concentrator in my room for sleeping but from there to the treadmill in the garage is more than 300 feet. TOO far to run tubing!

I feel fantastic having it set at 3mph for my walking and then 3.2 for my jog. By the time my 60 seconds are up I need a break. But it is a start!

Today was a little rough compared to yesterday. I went as long as 2.5 minutes in between to catch my breath and get good numbers back. Plus it is so muggy and hot that after one round of jogging I an DRENCHED in sweat! Never done that before from working out lol!! It also doesn’t make me cough while jogging, but as soon as I stop I start up. I keep water with me to hydrate myself and the combo has been helping me move some good goo out!

I love that I am jogging though. It gives me a reason to go out there and DO it. With just walking I find myself making excuses but now I have a WRITTEN GOAL. Not just some “well I need to do this” type of goal. I don’t care if it takes 4 months to get to this goal. It will happen. And when it does you can guarantee that my arse will be celebrating!!!

Last night I went out with ma girls and we were dancing! Yes I was dancing! YAY!!! I didn’t last too long since it was getting towards the end of the night. But I did it. Tonight I am tired! I was out late and up early to do my IVs. It was kinda fun “shooting up” in the bar haha! As soon as my last treatment is done at 12 I am off to lala land for the night…I can’t wait!!!!!!!!!!!!!

Heart broken...

but not in the sense that you all may think.

I have been having mini anxiety attacks at night. I am super worried about my heart. My actual heart not the “love” one. Throughout the day and at night I can feel my heart beating. Sometimes it feels like it is going to explode right through my chest cavity. Sometimes I feel like others can see it beating. Sometimes I will even grab my stethoscope and see just how hard it is beating. But then the crackles from my lungs over ride the heart and I can’t hear didly.

I have this down on my list of things to talk to my DR about at my next clinic appointment on September 24th. I am just worried that I am going to end up needing a heart and lung transplant. My worries are totally unsolicited since I have no idea if my heart is even behaving in a bad way. For all I know my resting heart rate of +100 could be ok. Though I highly doubt “resting” at that elevation is happening. I’m already hesitant about a lung TX so adding the heart into it might be the factor that throws me to a no. Or what if I get the lungs and then a year later I need a new heart? That is a lot to put on the body. Again totally could be worrying for no reason here.

I have been checking my O2 and HR when I wake up in the mornings. Right after my alarm goes off I thrust my finger into the pulse ox and stare at the bright green light. Almost always I am around 90% or lower and my HR is above 115. I just woke up WTF? I am also going to ask about a sleep study. More for curiosity’s sake than for anything else. I am sure my O2 doesn’t drop low enough to warrant supplemental oxygen at night, according to the insurance companies, because they are doctors ya know. Or maybe my heart rate is super high and THAT will get me O2…who knows. But for now I will just lie in bed at night listening to the thump thump of my heart and hope that I don’t freak out.