Well Tuesday I was de-accessed at clinic. So glad. I was totally over IVs. Unfortunately instead of my lungs improving with another week they went down.
I was a little annoyed at first though. When doing them, the RT had the screen faced away from me so I couldn't really see the results. I usually see them. No biggie. She was a new one for me. So after the first blow she says "oh good you went up from last time." So I am thinking sweet maybe I hit 40%!!! Second one she says "even better!" So I am pumped to get the print out.
I don't know where she was looking. My guess is FVC/FEV1 instead of FEV1. That is the only one where I am slightly better than last week. My FEV1 was 1.03L at best. Remember last week I was 1.10L. And before the hospital I was 1.13L (.95L got me admitted). WTF? I was not going with another week of IVs though. I feel fine. I wouldn't have guessed my numbers were down.
I also lost 3lbs from the week before. I was shocked. My home scale stayed the same. To be honest I am not worried. I don't eat as much during the summer and with the exercise, I am bound to shed a few pounds. If I lose too much more than I will start to worry. And once fall hits again I will pack the pounds on again I am sure.
She also gave me a one week trial of the TOBI Podhaler. I am supposed to wait 2 weeks then give it a go. I am nervous though considering the reactions I get from any inhaled antibiotics. I don't want to be spazzy for a week. Plus I am back to feeling great at the gym and I don't want to ruin that! So I don't know if I will try it or not...
I also found out I am culturing Steno Malt again. Bleh. So I started a 2 week course of Bactrim last week. Could be why my numbers are still down, but I was culturing it when I was in patient too. So it doesn't explain why they went down from last week, only that they are down overall...maybe.