Saturday, December 31, 2011

Ringing in the New Year!

2012 is sure to be filled with a ton of excitement. P and I get married in October, then go on our honeymoon to Hawaii.  My brother turns 30 around Thanksgiving so we are going to celebrate it with my family in PA. I am continuing my Master's classes (thanks to the disability department at school for getting my financial aid sorted out). Many new babies and weddings this year for friends and family.  Plus any exciting things that may happen along the way.  I am looking forward to a new year filled with exciting times and new adventures.

I have set some resolutions for myself for this upcoming year.  With no pressure though. These are things that I need to work on either way so I am adding them to my resolution list.  

1. Use my Wii fit to exercise and get my exercise age down from 44 to something closer to 31. I want to make sure I am not on O2 24/7 when I walk down the aisle to marry the love of my life.
2. Eat healthier foods, and cook more so the whole family eats better.  We all need to eat better and stop with the processed junk foods.
3. Pay more attention to world happenings. I am ignorant to what is going on in the world. The news always depresses me but then I don't know anything of importance.

As I ring in the new year tonight with my soon to be hubby I reflect back on the 2011 year.  So much happened! P proposed to me (by far the most exciting!). I started grad school.  We had our first family vacation together. We got a dog. I started the transplant evaluation process. My family got to visit me and see my new home.  P bought a new car. I got my hysterectomy.  My afghan won 1st prize at the local fair.  And that is all I can remember right now.  There were many little moments through out but these are the most memorable.  Unfortunately not everything was happy. We lost many CF friends.  The greatest lost for me was Bree.  I still miss her terribly and hope she is enjoying her time with those she loved and lost before her.  

I hope everyone has a happy and healthy new year and takes whatever life hands them in stride.  There will be good times and bad times but through it all we will press on.  May you all be safe this evening!!!

Sunday, December 25, 2011

Wednesday, December 21, 2011

Gut Troubles

The past few weeks I have been having some gut issues.  I initially thought it might be Celiac's (runs in the family) but we are trying something else first.  I have been really bloated, worse than normal, and it comes on even if all I have is a small cup of OJ.  Not normal.  I have also been having bathroom issues that I won't go into detail with on this public of a place.

Today at clinic I got an X-ray done of my abdomen and am getting tested for C. Diff.  The X-ray showed no blockages but a definite fullness.  As in stuffed to the gills, need to do something about it fullness.  So tomorrow I get to spend all day trying to empty myself out so that I can enjoy Christmas dinner and not want to explode, literally, after my first bite.  My fingers are crossed I only need the one day since I have a lot of food shopping to do on Friday to prepare for dinner on Christmas day.

Other than that my PFTs were slightly up (40% vs 37% last time) but I requested a round of IVs prior to starting class on the 19th.  I go in for my endoscopic ultrasound on January 12th so we are going to start IVs then as well.  There should be no issues with me being out to start on time.  If I feel a lot better after my mini clean out tomorrow I might see about just making an appointment for that week and seeing if I really need to get IVs.  Who knows, a clean gut might help the lungs out.

That is all my bloggie friends.  Hope you all have a very Merry Christmas and Happy New Year!!!

Monday, December 5, 2011

Crochet Sale for the Holidays

I have a few pieces of inventory I am selling on SALE for the holidays.  If you are interested just post under the picture of the piece.

Crochet Cyster's Crafts

Plus it will help us pay for our wedding!!!

Friday, December 2, 2011

Insert Catchy Title Here

I have been a miserable, hostile bitch the past couple of weeks and had no desire to blog so I apologize.  Besides you probably would have blocked me if you could have seen what was in my head!  We lowered my Wellbutrin dose to 150mgs so I would stop getting nauseous, and it helped, but I got violent. Not physically, but verbally and in my head.  So once I figured out that was the culprit I stopped!  Now waiting to get back to normal.

Wednesday I had a very busy day in Boston.  I started with CF clinic.  My weight is up, my lungs sound fairly clear, but my inflammation is wreaking havoc on me still.  Last appointment I was 50% FEV1 (fluke but still) and this time I was 37%.  Part of that was because I had to avoid any duoneb or symbicort before my PFTs at transplant clinic after CF clinic.  Shhh I did about 3 minutes worth of my duoneb at 7am so I could at least function somewhat.  My guess is I am about 42-43% based on my SOB and overall feeling healthwise.  So we decided to put me on 2 weeks of oral Cipro and I go back the week of Christmas to see if I have improved at all.

After clinic it was off to get a full set of PFTs done and a 6 minute walk test for my transplant evaluation.  PFTs were uneventful, just like usual lol.  The walk test I started off slow so I could maintain my pace the whole time, but I ended up having to slow down about halfway through.  My O2 wasn't too bad at least.  I dipped to 88% at one point, but since it was reading my HR at 71, we weren't sure how correct it was.  So 90% was written as my lowest sat for the walk.  I have no idea how far I walked, as I didn't ask.  One thing I found interesting was my BP before the walk was 99 (top number I don't remember the bottom number) and 129 (again only top) after.  That's quite the jump!

After that I had a 90 minute reprieve to eat lunch and relax till I had to go get my bone density scan done.  Since it has been almost 6 months since my hysterectomy, it was time to get scanned and make sure I haven't started to loose any bone mass.  We shall find out in a couple of weeks!

Other than that, nothing exciting to post about.  Only things I have left to do for my evaluation are my last shot for the Hep B vaccine, dentist appointment and the 24hour PH probe.  That one I am not looking forward to!  Tube down my nose in my stomach for 24 hours....yay......