I have been a miserable, hostile bitch the past couple of weeks and had no desire to blog so I apologize. Besides you probably would have blocked me if you could have seen what was in my head! We lowered my Wellbutrin dose to 150mgs so I would stop getting nauseous, and it helped, but I got violent. Not physically, but verbally and in my head. So once I figured out that was the culprit I stopped! Now waiting to get back to normal.
Wednesday I had a very busy day in Boston. I started with CF clinic. My weight is up, my lungs sound fairly clear, but my inflammation is wreaking havoc on me still. Last appointment I was 50% FEV1 (fluke but still) and this time I was 37%. Part of that was because I had to avoid any duoneb or symbicort before my PFTs at transplant clinic after CF clinic. Shhh I did about 3 minutes worth of my duoneb at 7am so I could at least function somewhat. My guess is I am about 42-43% based on my SOB and overall feeling healthwise. So we decided to put me on 2 weeks of oral Cipro and I go back the week of Christmas to see if I have improved at all.
After clinic it was off to get a full set of PFTs done and a 6 minute walk test for my transplant evaluation. PFTs were uneventful, just like usual lol. The walk test I started off slow so I could maintain my pace the whole time, but I ended up having to slow down about halfway through. My O2 wasn't too bad at least. I dipped to 88% at one point, but since it was reading my HR at 71, we weren't sure how correct it was. So 90% was written as my lowest sat for the walk. I have no idea how far I walked, as I didn't ask. One thing I found interesting was my BP before the walk was 99 (top number I don't remember the bottom number) and 129 (again only top) after. That's quite the jump!
After that I had a 90 minute reprieve to eat lunch and relax till I had to go get my bone density scan done. Since it has been almost 6 months since my hysterectomy, it was time to get scanned and make sure I haven't started to loose any bone mass. We shall find out in a couple of weeks!
Other than that, nothing exciting to post about. Only things I have left to do for my evaluation are my last shot for the Hep B vaccine, dentist appointment and the 24hour PH probe. That one I am not looking forward to! Tube down my nose in my stomach for 24 hours....yay......