Today I had clinic. It went well. Thankfully I got my PICC pulled! Tomorrow morning when I shower it is going to feel amazing. My FEV is back up to 45% and everything sounds good.
I was able to talk to the social worker and here is where my troubles begin. I'm not so sure about SSDI now. I'm very worried that I'm not going to get much (or at least what my print out each year says I qualify for) and you can't make much working part time on it either. I REALLY REALLY REALLY want to move to Boston the end of this winter, but I can't live there if I'm making didly squat. Its not like I'm going to have someone to live with and yes a roommate is out of the question.
I was afraid she was going to tell me something I knew was true but hoped it wasn't. I won't qualify for Medicaid in PA because my company offers COBRA. So I'll have to pay $400 a month for that PLUS my shitty co-pays. That right there would be 75% of my SSDI income. Not good.
My mom told me she would like to move to Key West in the next couple of years. So either way I would have to live on my own, be it down here in Langhorne or up there around Boston.
My thought is what if I find a full time job when I move? Is that so bad? I know what the minimum is that I need to bring home to survive. However, if I don't work I can take classes which gets rid of my student loan payment for the time being. Maybe I can find something good up there that will allow me to live on my own.
I don't know what to do. I really want to move and I really want to be independent about it. I will have to look more into MA welfare programs and see what I can do. I hate saying welfare but its needed. Or maybe I can find a small part time job that will offer benefits. As long as I can get health and rx coverage I'm good. I'll skip eye and dentist if I need to.
And of course this brings up a secondary thought. If I decide to work full time up there why am I waiting until March to move? I could go right after Christmas.
So much to think about, so much to decide...
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