Thursday, October 15, 2009

Trying this again

I wrote a nice long blog the other day, attached a picture, decided to delete the picture and oops there went the whole blog. Not easy typing on a blackberry so I decided to wait to try again. So here we go!!

I am feeling a whole lot better. The tightness is gone and with it is the pain. I just have some slight soreness but I attribute that to not using my lungs for two weeks. So I pretty much feel almost baseline. There was only a small infection behind my blocked airways which is good. Of course if I had been smart and called right away there wouldn't have been any haha. Another patient was admitted yesterday for the same thing - a bad reaction to Colistin. So I feel better knowing that this is most likely what caused my bronchial spasms.

The Prednisone did wonders and I'm glad we used it. Took the inflammation down almost overnight. I've been tapering it since Sunday and I'm down to 5mgs in the am and 5mgs in the pm. So this way when I go home I'm off of it. But its nice to know it worked so well so that if this happens again we are prepared. I'm sure I'll have to try the Colistin again just to see what happens. It could have been a fluke, it could have been that or maybe it was just the seasons changing. But knowing I have the Prednisone if it does happens makes me feel a bit safer. Those spasms are SCARY!!!!

I've been lucky with tons of visitors this round. I feel blessed to have such great family and friends. Its been good for my spirits too. I only had one other day where I was a little upset. But I woke up the next day feeling better. You can't dwell on things that can't be changed. Just have to accept them and move on.

One of the great decisions I made in here is to definitely do SSDI. I've spent my time in here worrying about work and that's not fair. I shouldn't have work as my top priority. I need to focus on me and get me healthy so when I am evaluated for transplant I am a good candidate. I need to work on exercising so that in the spring I can run that 5k. I need to hang out with my family and friends more so that everyone has good memories of me when I pass (hush people). I don't care if people view me as lazy anymore. At least I'll have a dam life right?!?!

I'm hopefully coming home today or tomorrow. Dr H is in Minn at the CF conference and there is another pulmonary Dr filling in for him. I saw him yesterday and he said he would shoot to get me out today. So that is exciting. If so, I can go to Boston for the weekend! My birthday present to myself wohoo!!! I'll take it easy seeing as how the person I am visiting ( well the CF part of the couple lol) was just released from the hospital too. But we will see Salem and I can only imagine how awesome it must be around Halloween! Bring on the witch hunting!!!

That is all I have for now. I say leave you with a request...
If everyone could say some prayers too. My step mom's liver enzymes are elevated and we are worried the cancer may have spread. I think we find out today or tomorrow. Not too sure. But please keep her in your thoughts and prayers. Thanks!

Sent from my Verizon Wireless BlackBerry


  1. Yay for parole! I hope it happens today. Good luck!

  2. Glad you are feeling much better!!! Hope you got out today ;) and are able to have a great birthday weekend!

    Praying for continued feeling good and for SSDI process to go smoothly!!! Definitely need to take care of yourself and not over-worry either about less important things, like work!!! Probably a good decision until transplant!

  3. Glad to hear that things are under control with your lung spasms and all that! Yay for getting sprung from lockup soon! :)

    I agree that you need to focus on your health not work! (Do what I say, not what I do.... LOL) It clarifies my thoughts when I read in your Blog things that *I* need to do as well. It's so obvious when someone else writes it down. So thanks for that!

    I'll say a prayer for your Mom. {{{Hugs}}} to you both.