As my doctor has told me to yesterday, I started monitoring my O2 throughout the day. I used to be really good at this but I have slacked off int he past few months. So today I hung my oximeter around my neck and got to work...on cleaning, laundry and food shopping.
Cleaning - not bad, never dropped below 91%. Granted I did it all immediately after my morning treatment.
Laundry - right along there with cleaning. I still have some clothes in the dryer I need to fold, but my back ache is more troublesome right now than the lungs. I just did my nightly treatment.
Food shopping - of course the public chore is the one where I dipped below 90% and stayed there. I averaged around 87% the whole trip, dipping down to 81% when loading the bags into the car. I didn't even check after carrying them in the house...I was too nervous.
She told me if I get below 90% with ANY physical exertion I need to wear my O2. Does this mean I need to lug my O2 with me to the food store? I will have to go in public with tubing on my face? My CF won't be hidden anymore? I will be able to park in handicap and NOT look like I am lying?
As I sat in my car after loading it up with bags and trying to catch my breath, I thought of what she had told me, and then I thought that I will have to wear my O2. And then, the tears came. Just a few, nothing hysterical, but they came. I'm 29, I don't want to wear the O2 in public and shout to the world that I have a horrible lung disease and it is kicking my ass.
Call me wussy, call me a baby, but I don't wanna!!!!!!!!!!