My journey with Cystic Fibrosis: New Video

Wednesday, September 28, 2011

New Video

Just a video with me chatting on what has been happening in here. Enjoy!

2 comments:

SaraSeptember 28, 2011 8:27 PM
aww, you're cute. even when you're flushed. :)
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TerriSeptember 29, 2011 12:07 AM
I'm a day late watching this but wanted to say I am thinking/praying that all works out for you. Not being sick enough to need a transplant is a good thing...keep fighting girl!
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My 101 things in 1001 days List

My list should be completed by July 8, 2011

1. Pay off credit card debt

2. See a show on Broadway

3. ~~Make friends with people I wouldn’t normally be friends with~~

4. ~~Create a scrapbook~~

5. ~~Print out all my pictures I have on my computer (that are worthy of printing)~~

6. ~~Get my computer working again so it reads CDs~~

7. Take a cooking class

8. Start riding horses again

9. ~~Write a short story~~

10. Have the short story published

11. ~~Finish at least one book a month (33/33)~~

12. ~~Take another history class~~

13. ~~Get a sleep study done for O2~~

14. Take my jeep “muddin”

15. Take a Caribbean vacation

16. ~~Do the tourist thing in Philly~~

17. ~~Get a professional massage~~

18. See my nephew more often

19. Have dinner with my dad and step mom once a month or every 6 weeks

20. ~~Donate all my old books to the library~~

21. ~~Get all my pants hemmed~~

22. ~~Get a CF tattoo~~

23. ~~Do volunteer work~~

24. ~~Get rid of old junk~~

25. ~~Start exercising more~~

26. Make homemade Christmas presents one year for everyone

27. Paint a picture

28. Do saline rinses religiously

29. ~~Delete old files off my computer~~

30. Go to the movies once a month

31. Smile at a stranger at least once a day

32. Spend a night under the stars

33. ~~Go camping~~

34. Learn to knit/~~crochet~~

35. ~~Go to Disney World~~

36. Win a Halloween costume contest

37. Make candles from scratch

38. Buy a mountain bike and actually USE it

39. ~~Back up all my blogs~~

40. Go on a super romantic dinner

41. Display my Lenox crystal animals in something other than a moving box

42. Visit all 50 states (37/50)

43. Spend a day at the spa and not worry about price!

44. Go tubing down the Delaware

45. Learn to drive a wave runner

46. ~~Get a colonoscopy~~

47. ~~Make chicken noodle soup from scratch~~

48. ~~Make an edible beef stew~~

49. Take an Italian class

50. ~~Take a writing class~~

51. Visit Williamsburg VA and Gettysburg PA

52. ~~Learn to cook things other than chicken and rice~~

53. ~~Start going back to church~~

54. Wish on a shooting star

55. ~~Stay off of lung transplant list (active list)~~

56. ~~Celebrate 30th birthday with HUGE party~~

57. ~~Send Holiday cards to family and friends~~

58. ~~Update address book~~

59. Pick my own strawberries

60. Visit Times Square for Christmas

61. Go to Vegas

62. Start doing Pilates/Yoga again

63. ~~Date more and not be so darn picky about dates~~

64. ~~Keep a private, paper journal~~

65. Eat more organic foods

66. ~~Visit grandparents’ graves~~

67. Take NCIDQ exam...and pass!

68. ~~Become a member of ASID~~

69. ~~Save money~~

70. Make a will

71. Do a scavenger hunt

72. Throw a surprise party for a family member or friend

73. Spend an entire weekend in bed/on the sofa (not sick)

74. Recruit more people to be organ donors (2)

75. Go ice skating

76. Go roller skating

77. Play volleyball

78. ~~Stop working so much~~

79. Spend more time with friends’ kiddies

80. Go to First Friday in Philly

81. Take a flying lesson

82. ~~Actually go Christmas shopping on Black Friday~~

83. Finish Christmas shopping before December 1st

84. Go on a picnic

85. ~~Learn to ballroom dance~~

86. ~~Bake homemade banana bread~~

87. ~~Recycle more~~

88. Buy more organic products

89. Throw a Halloween party

90. ~~Start Birth Control~~

91. Get teeth whitened

92. ~~Meet more online friends in person~~

93. ~~Be more feminine (i.e. more necklaces and earrings) for work~~

94. Have a yard sale

95. Work on self esteem

96. Watch entire Disney animated movies collection

97. Curse less

98. Plant a tree

99. Do a random act of kindness

100. ~~Meet the man of my dreams~~

101. Celebrate completing 101 things in 1001 days!