Thursday, September 29, 2011

Such is the Life of a Shitty Lung Patient

There are days when I wonder why I am sitting in a hospital room getting tests done for a double lung transplant evaluation because I feel great.  I feel like I could walk to China and back.  Then there are moments when I go to the bathroom, walk out, start coughing and need 15 minutes of lying on my bed to calm down some, that make me realize why I am here.  Its those moments, which are closer together now, that have put me in this spot.  I may feel wonderful at 10am but at 5pm, after 3 treatments, I might want to rip these airbags out myself.  Such is the life of a shitty lung patient...


  1. Hey Amy, Very good point. I think sometimes the whole CF progression thing just sneaks up on you. But it's great that you are getting all prepared for TX ahead of time so that you will be all ready for when it is time. Take care. -Leah 30 w/CF

  2. You never know how you are going to feel from one day to the next. Cf has a way of making you feel GREAT one day and HORRIBLE the next, but if you know you can make it through the horrible days you know the GREAT days are so well worth it.

  3. Hey I noticed that on your list of things of to get done, one of them was to get a CF tattoo I was wondering if there is somewhere I could go to see your tattoo. I am pretty obsessed with tattoos and have a pretty BIG CF tattoo myself.