Clinic went well today. For the first time in a few years I am not trying an oral antibiotic on the first appointment after a round of IVs. I feel OK, not fabulous, but not bad, and since my numbers are roughly where they were last time (post bronchodilator) I can wait and see her again in 2 months. If I make it that long I will be ecstatic.
Since I had to meet with my professor this morning at 10 am and clinic was at 12:30, I knew I would be in need of a treatment. My numbers reflected this. I blew at my highest at 1.01L, 35%. Last clinic I was 1.16L, 40%. But I was trying to get into a Pulmozyme study so I asked if I could have an albuterol neb and try again. We did! I hit 1.15L, 40%....but it was not good enough. The calculations they use for the study had me at 37.5%. Sad :( This is the first time I have ever been disqualified from a study based on FEV1 being too low. I am not happy about that. What can you do though right?
Holding steady I am. I registered for classes yesterday and my summer will be BUSY. 3 classes, one is a 12 week class, one is a six week class, overlapping the last six weeks of the first and the third class is a full week institute that will take place simultaneously with the other two classes. So the third week of July I will have 3 classes! My week is going to be hectic! Monday I will be at school from 8:30-4:30, then Tuesday, Wednesday and Thursday I will be there from 8:30am-9:30pm and Friday again from 8:30-4:30. Can we say fevers and sleep that weekend? I don't care though. I need to finish by December and to do so I need to take three classes this summer and two this fall. Plus this will test me out on something I am thinking about...
Going back to work.
I have been working out at the gym five days a week doing cardio, but will be adding strength training in shortly. Sunday's I take a Yoga class too. My goal is to work my butt off (literally as well as figuratively), and see if I can get my heath more stable and get it up. If I can get to 45% and stay off of IVs for 6 months, then I will seriously consider working again. P is not excited about it, but he said he will support me....but only if it won't make me sicker faster. I agree with him. I don't want to go back to work and in three months have to stop again and be listed for transplant. But I have nine months to think about it, weigh my options and decide if it could work.