I am home from the hospital. I actually got out on Monday but I have been so busy finishing up my paper, that I turned in Wednesday, and appointments, that I haven't been able to update.
I was admitted last Wednesday night and for some reason on Thursday afternoon I spiked a fever. 102.3 at its highest. No flu, no blood infection. Nothing out of the ordinary except that fever. Tylenol brought it down and by Friday night I was back to normal.
The doctors started me on Q36 for the Tobra this time since we always end up at that point anyway. Seemed to work well. Then I came home. I had 3 doses total when the nurse drew my labs Wednesday morning and I was told yesterday to stop taking it. Kidneys are not happy. WTF!? So now I am on oral Bactrim, oral Cipro and IV Ceftaz, aka. cat piss. Hoping my FEV1 came up a bit so that I can stop the IV Ceftaz before Christmas. I have clinic on Tuesday. My body never responds to orals. This is just wonderful.
Yesterday, Thursday, I had my follow up appointment to my colonoscopy. It was a little disconcerting. My colon polyp was adenoma as usual. That wasn't concerning. But, like I mentioned before they were finally able to biopsy that pesky cyst on my pancreas. Turns out it isn't CF related at all. Its a precancerous cyst related to my Lynch Syndrome. Like the adenoma in my colon, if left untreated it has the potential to turn to a cancerous tumor. "Biopsy of your pancreatic cyst revealed benign cells and CEA level 825 with amylase less than 3. This may be consistent with a mucincous type of precancerous pancreatic cancer." Fabulous. We didn't' discuss removing the cyst. Honestly I was a bit in shock that it WAS something that I forgot to ask about surgery. She wants to monitor it every 6 months with MRI/MRCP's again, and if it grows, I can talk to a pancreatic surgeon then. I am going to email her about just having it removed. I don't want that shit growing. On the bright side, I don't need mammograms just yet...
That is all for me. School is over and I am doing lots of crocheting and sleeping. I will post an update next week after my clinic appointment.
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