Fun snow pictures

Well since I have been bitching that we never get snow I thought I would post pictures of the 3 inches we got LOL!!!  It's better than nothing :)  And it looks so pretty...now if we could just get the 2 feet I want sheesh!!!!!!!

President Obama

Well today history was made.  President Obama was sworn into office as our first black president.  I have a good feeling about him.  I think he will bring us much needed change and reform.  I was  unable to watch the entire inauguration since I was at work.  But I was able to at least see him take the oath.  We had it streaming on our main computer at work in the conference room so everyone that wanted to watch could.  It was very choppy though and we didn't see it all, just enough to get the gist of it.   I will look for it tomorrow and hope to be able to watch his speech.

I am quite happy with the turn of events and look forward to the next 4 or maybe even 8 years!

Photo Tag!!!!

You have to love these games haha!!!!

I was tagged by Christy :)  Thanks hun I always seem to get them from you!!!!!!

Here are the rules:

1. Go to the 4th folder in your pictures folder and select the 4th picture there....no exceptions!!!!  (ok I will allow only one...if you are naked or doing something dirty/naughty)!!!

2. Post the picture with an explanation and link it back to the tagger.

3. Tag 4 people to do the same!

                                           

Here is my photo.  It is from my friends, Carrie and Dave's, son Carter's 3rd birthday party back in July.  Phew did you get that?!?!  That is the ferris wheel birthday cake my SIL made!  tell me it doesn't look yummy!!!!  All you sweet toothed people like me are drooling!  Carter is the one holding the pretzel in the striped shirt.  My nephew is in the forground in the green shirt with the lollipop.  LOVE them both!!!!!!!!!!!!!!

Now for my 4 people!

I choose:

Lisa

Bree

Tara

Jenn

There are more I would have loved to link to but rules are rules!!!

Enjoy ladies!!!!!!!

<3

Clinic Appointment

Well today was clinic.  And I am NOT getting locked up!  I was actually a little surprised, though I woke up this morning and felt better than I had in a few days.  I am stable right now.  First numbers are today the ones after are last appointment on November 24^th.  

FEV1 - 1.24L (40%)  1.26L (40%)

FVC - 2.11L (57%)  2.40L (58%)

FEF 25-75% - .55L (15%)  .49L (14%) 

My numbers are down very slightly.  But nothing that is worrisome.  

And holy shit I gained 3 pounds!!!  I now weigh 121!!!!!!!!  I  have never been so heavy in my entire life!  The dietician said my ideal weight is 125-126.  I said phooey I am staying here!  

I talked to him about the TOBI and my tightness and he put me on Singulair and Symbicort.  He said to stop the Serevent and just do Symbicort.  My airways are inflames and reactive so hopefully this will help it so I can tolerate TOBI and keep kicking the PA’s ass.  I am also to do Albuterol before I do TOBI (as normal) then do the Symbicort then put Albuterol in my TOBI and see if that helps also.  If it doesn’t help I am to call him and he said we will figure something else out to combat it.  Fingers crossed it does though!!! 

Let’s see what else?  Hmm.  Oh I asked about the blood in my stools and he said it sounds like hemorrhoids (ahhhhh!!!!!!).  But that is normal given all the coughing that we do.  So that is nothing to worry about.  He said or it could be something like the enzymes not dissolving completely where they should and when they get to my colon/intestines they are breaking down the tissue there.  They don’t have any clue it is body tissue and not food so it just does its job.  So that is a possibility too.  

BUT the fun part of the appointment was…he is trying to get in contact with the colon guy at HUP.  Apparently they are doing some sort of research on families with genetic colon cancer.  When I told him about my family’s history all he could say was “wow”.  I guess we had never told him the extent of the genetic link.  He was floored that it is basically in my genes to get it.  He could not get a hold of the DR while I was there so he is going to call me back at some point and let me know what the DR says.  So now I am going to call my Grandmom and see who had it and all the fun lineage stuff. 

That was it.  OH yeah I had my dermatology appointment this morning too.  She prescribed me a medicated face wash and cream to use.  So I have to go back in 8 weeks to see if it helped at all.  I am hoping it does.  Not that my acne is all that bad but it is leaving purples spots all over my face and I look polka-dotted!!!!  

Below is a picture of Philly from my view stuck in traffic at 30^th and Market street.  Fun times!!!  And also a couple from Sunday when Rocky, Maggie and I were all cuddling in my bed reading.  So cute!!!!  And little Owen from Sunday too.  He is adorable!!!!!!  I have a video of him crawling and if I can figure out how to upload it I will!

Mucus...oh the joys of CF

I am mucusy...yuck.  Full of fun yellow/green goo.  I think there is a 50/50 chance I will be thrown inpatient on Wednesday at my appointment.  If so I am gonna ask to go in Thursday so I can at least come home and pack and tell work.  I am NOT packing a bag so I have the option to go in the next day.  Besides I am not totally sure he will want me in.  I might be ok.  I guess we will see how far my numbers dropped.  

So until then I will continue to spit the yummy goo and cough till my head explodes!!!!!!

<3

So very tired

I have been sitting at work all day trying to concentrate but I can’t. I’m just so tired. Partially because I was up kinda late reading. Partially because I am just tired. Worn out. Done. I keep thinking about how nice it would be to work 4 days a week and only 5 hours a day. Or 5 days and 4 hours. Something small and little and short like that. But instead I work 4 days a week for 10+ hours. And I only do this because I NEED health insurance and I can’t afford to get it on my own. Besides COBRA is 18 months. Again with this whole shit I know. Are you sick of reading about it because I am tired of writing about it?

After the holidays, we all came back to work and those people that were gone for the full 2 weeks were happy to be back. I was not one of those, though I was close only being in 2 days between Christmas and New Year’s. My cubby-buddy commented that she could never stay home all the time because she would get bored not working. Me, I think I could get used to it. The ONLY reason I stay is because of the health insurance. It is fabulous. And the only reason I don’t go part time is because I lose my health insurance and have to COBRA it. It’s all or nothing with my company.

I don’t want to work anymore. I don’t. Plain and simple as that. I am tired of getting up at 5:15 to do an hour of treatments before work. Then working all day, coming home eating and doing another hour of treatments before I climb into bed to read for an hour. And I’m tired of still not being able to fully function when I do my treatments. I’m tired of spending my days off in bed or lounging around because I have no energy and want to conserve what I do have. Maybe I am feeling this way because I woke up with a nasty sore throat and swollen glands that won’t disappear.

Where do people go that have no where to live and no one to support them? I don’t trust living with my mom. She is too financially unstable to feel comfortable staying there. I would end up having to loose something of mine so I could help with bills more than I could afford. That would totally suck. I would consider my dad but they don’t have a lot of room. And I don’t want to impose on my brother and SIL even though they said I could always go back to living there. I am in no way asking any of my friends to help me out. That is too much to put on someone. They have families and kids of their own, no need to adopt a 28 year old kid too.

I wish there was a place like senior living that was based on income, offered in-house everything like laundry and was close by. I wish I could live in those assisted living places. I wish I could afford to stay out on my own. I wish I was married. I wish I didn’t have CF.

Haunting

So I had the WEIRDEST dream last night and I needed to share it before it escaped me.

As everyone knows my step niece was killed in a car accident back in June.  Well last night she was in my dreams as a ghost and haunting me.  When my phone would ring she would be the picture and the ringtone would be her saying "hi Amy".  When I would try to drive my car she took over the car and would not let me steer, driving me into other cars and embankments (never fast just as sport it seemed).  I told my dad and step-mom and they wanted to see it and hear it too.  It was SO weird!!!!  In my dream I was also working back at my waitressing job and she was there the whole night screwing me up.  I eventually had to have my SIL take over for me so I could leave because I couldn't do ANYTHING.  The dream started out as me and my family trying to rent out the 3rd floor apartment in hour house (does not exist in real life but on the family farm the 3rd floor is haunted) but it was haunted and it was finally realized that it was her who was doing it, my step-niece. 

I'm telling you this was such a wacky dream and I can't for the life of me figure out if she was visiting me in my dream or I just decided that I was too be a weirdo in my sleep.

Who knows but we miss you Ashley!!!!!!  <3

Harrisburg - Inauguration

Today was the inauguration.  It was really cool.  Of course we could not actually GO in the house but they had TVs set up everywhere so anyone could watch it.  The whole process took about 30 seconds for the new representatives to swear to uphold the law blah blah blah.  But it took a while to actually GET to that point!  We got to Harrisburg around 11:15 and we left around 2pm.  We wondered around the capitol building for a little while then went to the Ryan Building where Frank had tables set up for us.  Each representative had a space designated for his “fans”.  We had stickers to recognize us.  It was like a big kids field trip!!!!!  HAHA!!!!  I took a bunch of pictures and I will post some of them here.  Since we couldn’t get into the chambers to watch them sworn in I took pics of the TVs!!!  

        

  
    

being sworn in!!!!!  We have NO idea where he was actually sitting LOL!!!!!!

My friend John and I stuck together and we wondered off to get “lost”.  It was fun seeing the offices and the secretaries, opps sorry administrative assistants of the Reps.  Me being the pussy foot that I am was nervous the whole time that we were gonna get kicked out haha!  But we didn’t.  I used the potty on the one floor and would have taken pictures if people hadn’t been in there.  Oh well!!!!!  I didn’t wanna look like a total tourist / out-of-towner!  

I got a great work out walking up and down tons of steps…who needs a gym membership I can just become a member of Congress!!!!!!  Next stop, Washington D.C.!!!!!!!

pooh

Pooh...I feel like pooh.  That's it.

Night!!!

New Year's

    

my BFF and I...It was well past 12 here but she wanted the pic with the hats on :)
  

my mom and I...yes that is me under all that!!!

my mom, her boyfriend and my aunt

New Year’s Eve was a lot of fun!!!!  I had a great time at both house parties I went to.  And I managed to stay sober so I could drive home and sleep in my own bed.  Mainly because I had to get up so I could make it to LBI (Long Beach Island in NJ) for the lighting of the lighthouse.  

Which I was wrong about in my previous post.  It hasn’t been lit since 1932.  It was built in January 1859 so it was the 150^th anniversary of the building of it.  It was FREEZING!!!  As you will see by the pictures we were all bundled up.  My batteries in my camera wouldn’t even work right!  At least that is what some guy told me when we were leaving.  I managed to get a few pictures before it just died on me.  We had to walk a few blocks to get to the park.  Seems everyone in NJ was there to see the lighting!!  And LBI is a small island so God only knows how it was holding all those people hehe…well it does during the summer but winter it is like a ghost town.  My Aunt lives down there so we were able to warm up at her house.  

So back to new years.  I did not get my new years kiss, though there really wasn’t anyone there that I wanted to kiss.  And the one person I would have kissed was not able to get out that night.  He was on baby duty.  Oh well!!!!  I still had a fabulous time and stayed out until 3:30am!  SO LATE for me!  Even my BFF commented that she couldn’t believe I was still there. 

Well enjoy the pictures!!!!!