I officially have half my lungs working hahahahaha at least for now :)
I was telling the study coordinator I would liken the study med to getting IVs. I don't feel tip top but my numbers are all up and I am coughing less. Now if I could just stop getting SOB with walking/moving/ etc....baby steps my friends.
That is the best way I can describe how I feel it is working. After a round of IVs we (usually) feel a lot better and can see an improvement. I am just hoping, that unlike IVs, I stay where I am after the treatment stops. That really is the only downer I see to this. Once the study is over in 2 weeks, no more miracle drug for me.
But at least I have a foot in the door for improvement ;)
And my blood pressure was FINALLY normal for me at 100/60, even if still moderately low.