Wednesday, April 29, 2009

Last day of the "drug"

Well this morning I had my very last dose of Cipro/placebo. It's very bittersweet. I am so glad to be done with the nasty powder but I'm also not looking forward to being without a strong abx for the next month or so. Especially since my FEV1 went back down to my baseline...44%. Not a horrific number but certainly not as good as the 50% I was at 2 weeks ago.

That is my normal course though when I am on IVs and stop. A couple of weeks after stopping I slide right back to my baseline. I might get to 48-50% right after I stop then boom...back down.

So while it's kind of disappointing it isn't a total surprise to me. I'm still better off than the 38% I was at when I started.

I basically chalked this whole thing up to a round of IVs since most likely if I hadn't received the drug (which is not official BTW, but very likely considering my success with it) I would have ended up on IVs at some point soon. I could feel myself getting sick. So now I am not sick and feel pretty normal. My normal sick if you will LOL.

I still have 2 more visits left to monitor me and how I do after stopping.

Everything else was good...weight still 119 and blood pressure still normal.

AND Saturday marks ONE YEAR since I was in the hospital. Not bad considering last year it was 3 times in 6 months!!!! So not only will I be celebrating my nephew's birthday I will celebrate being "healthy" for a year!!!! =D



  1. Congrats on 1 year out of the clink. As you said at least your numbers were still up from when you started the trial.

  2. See what having heat in the winter will do for ya?! 1 year, lock-up free! I'm so glad you moved!! :D

  3. pffft who needs heat ;)

    Thanks guys :)

  4. Awesome job Amy! My One year out was last month. Lets keep it up :)

  5. Woo Hoo yay for feeling good!!!

  6. Nice work on being out of the slammer for a year. Very cool!

    Can't wait to see the Cipro results... :)

  7. Congrats on staying out of club med for 1 year...that's awesome! I'll be praying you continue to feel good for a LONG time!!

  8. What a good post, and so excited to hear about your 1yr anniv. Congrats!

  9. GOOD JOB! 1 year out of hosp, eh? YOU CHAMP! You celebrate one year out, i celebrate (most likely) going in!

    Keep up the great work! Sorry about the crap baseline: never fun!