Today's appointment was much better than I had expected. I thought for sure the spasms and clamping would have left my lung function less than last time. However, I was pleasantly surprised when I blew a 40%! Granted its only up from 38% back in December, but its up and not down. I don't remember what my other numbers were last time but my FVC is at 65% and my 25/75 is at 14%. So my small airways still suck, as usual. I left with a prescription for Cipro so I can get the last of whatever is brewing in there out and maybe I can see 45% next time I come.
The rest was basically routine. My weight is stable. My O2 and HR were normal for me. My only issue was the slight fever I had - 99.1. Odd because I felt fine. And even odder because last night with my wicked headache I felt like I had a fever and was even flushed but I was only 98.8. So maybe it was a delayed reaction.
Dr H and I discussed my move some more. I told him I want to keep him as my doctor for as long as possible. To which he said in 20 years I'll have to be on my own without him (lol you need to know him so you can picture him saying this and why I laughed). He said that I should still call and set up a relationship with MGH or B&W so if I have an emergency like an acute bleed or obstruction I will have someone to call. When it comes to routine clean outs we can figure it out but we will find a home care IV place that works in Boston so I don't have to spend 3 weeks down here in Philly. I feel much better having made this choice.
One thing he did mention is to make sure my insurance will cover anything I need to have done in MA. If I do need to be admitted up there, I need to make sure I will be covered. That is easy enough, I can call next week and find out. He doesn't foresee anything major happening and I seem on the "right" track with my "garden variety" CF, as he calls it. So I can only hope that he is right and I don't have any unforeseen issues until my slow and steady decline leading up to transplant land.
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