This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process
Tuesday, August 10, 2010
Please Tell Your Rep to Vote YES for this Act
The Senate passed the Clinical Trials Act which allows patients to participate in clinical trials without losing their SSI benefits. Some patients, who are eligible to participate in trials desperately needed to find cures (not just CF), refused to participate because the money they would receive from the trial would put them over their alloted allowed income to receive SSI. This Act will allow them to go ahead and participate and not worry about losing benefits.
Below is a link to the CF Foundation's pre-written letter that you can send to your state's Representative. The Senate passed it, now the House has to. CF Foundation Letter