I don't usually read things that are
this long, but it was good!
And cool idea. My ? Is where did you
come from and how did you turn out so well?
Great
question!!! See I have these two cool
parents who decided to have kids, well kind of….They wanted kids but maybe not
so soon lol. But after they had me they
decided they needed another one, and they got this weird little boy. But that was OK, I am glad I have a weird
brother. Though I have been told I asked
if we could send him back a few times!!!
Turning
out well may still be out with the jury lol.
But having a kick ass support system helps and being allowed to live
life. I see so many parents wanting to
place a bubble around their child to protect them, CF or not. But that is not fair. Let your children go to sleep overs, have
friends over, go to school, socialize etc.
Because growing up isolated is hard.
I grew up thinking I was the only one who felt how I did with CF. Not until I went online to find a support
group for CF in my mid 20s did I realize I was not alone and was able to make
friends with people who GOT me. If
children are treated like they have a disease then they will live like they
have a disease. This doesn’t mean that
you should say screw it and miss a week’s worth of treatments, but if your
child wants to go to a sleep over and will miss one treatment isn’t that worth
it so that they can have a great life, not just a long life? (this
is where CFers and CF moms butt heads ha!)
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