Wednesday, September 24, 2008

Clinic Today

Clinic went well. My weight and numbers are up slightly. I put on 4 lbs! I now weight 116. Fat ass hahahaha!!!

My PFTs are as follows:
FEV1 - 42% 1.31L... it was 40% and 1.26L last time in July
FVC - 65%
FEF25%/75% - 15%

Overall very good.

I am being put on O2 at night! Yay!!! Just 1 liter for now, but I am glad about it. So I have officially joined the O2 user ranks LOL. I have to start exercising regularly though. They want me to monitor my O2 when exerting myself. So it looks like I NEED to get my fat butt outta bed on the weekends and get there, and start walking at night with my friends and SIL.

He is also stoked about my 4 day work week which I will be starting soon...kinda. Most likely Nov 1st or somewhere around that date.

I didn't ask about tx but I just am not ready to hear his response to be honest. As much as I want to know what his criteria are for recomending tx I am not ready to hear that I may be closer than I thought. So I will hold off on that for a while :)

Back to work I go weeeeeeeeeee!!!!!!!!

10 comments:

  1. Yay! Congrats on the good numbers!

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  2. Wonderful that the numbers are up. I am somewhat surprised he wouldn't be more forthright about whether you need to initiate the tx wait or not. I guess some docs are different. Not a subject you want to wait too long on though, right?

    Good luck whatever happens on that front.

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  3. Great news! Super glad to hear you got the O2 issue worked out... now you can join our oxygen cystics club!

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  4. Good your numbers are up! It sucks having to do the O2, but you will feel more rested using it!

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  5. Don't you worry, you'll hate O2 soon enough.

    (always the bringer of positive thoughts, I am)

    I hope you don't wake up strangled by the tubing...as I often do. I beleive it's a message.

    best of luck to you deary!!!!

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  6. Maybe the weight gain was all of the good food at Disney? LOL Anyway, congrats on a good appt. I'm glad to hear you are trying the O2. I hope it makes a difference in how you feel.

    Stacey

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  7. Glad to hear you had a good clinic visit. I always wonder what my docs criteria for tx is too, but at the same time I want to avoid the question.

    Again Yay for good clinic visit!!

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  8. Amy,
    I'm SO glad your numbers are up. My docs didn't even mention transplant to me until my fev1 was in the upper 20's.
    Hooorayyy for 4 day work weeks, weight gain, and I'm glad you will be on some O2 at night. It should make you feel more rested in the AM.

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  9. 42%?! well crap, that just means I have to work HARDER to keep up with you...one percentage point to go (I think I can, I think I can).

    Great news Amy - tx is a few years off yet!!!

    btw, if you're gonna use that o2 at night, you better get used to those sinus rinses again - otherwise you're nostrils will be crusted shut with dried out, gloppy goo (appetizing, huh?).

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