Mastering the Art of Breathing, One Stitch at a Time

This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process

Monday, November 24, 2008

Good articles to read

http://www.xconomy.com/san-diego/2008/11/24/sequenom-may-spot-single-gene-birth-defects-like-cystic-fibrosis-in-a-sample-of-mothers-blood/

http://www.walesonline.co.uk/news/cardiff-news/2008/11/24/pupils-use-creative-skills-to-express-their-vision-of-future-91466-22322622/

http://news.bbc.co.uk/1/hi/health/7742873.stm
Posted by Amy at 6:03 PM
Labels: articles, CF, research and news

No comments:

Post a Comment

Newer Post Older Post Home
Subscribe to: Post Comments (Atom)
Follow @CrochetCyster

My Blog List / Friends

  • Cystic Gal
    The Long Doctors' Appointment, It is an honor to meet me.
    5 years ago
  • Somer Love
    Alex Award
    6 years ago
  • JAMIEBUG
    6 years ago
  • Live Laugh Lungs
    Four Seasons
    8 years ago
  • Welcome to Joshland
    It's All Good In Joshland
    9 years ago
  • Tara
    Terrible Twos All Over Again
    9 years ago
  • Wendy
    10 years ago
  • Piper
    What I Know Now
    10 years ago
  • Tina
    Niagra, The TA, and meltdowns
    10 years ago
  • Stephanie
    Where has time gone?
    10 years ago
  • Crochet Cyster's Crafts
    FREE PATTERN - Hooded Cowl
    10 years ago
  • Stacey
    Minding My Own Business
    10 years ago
  • Jamiebug Workout
    P90X Lean
    11 years ago
  • Shannon
    you make me weak and wanna die, just when you said we'd try
    11 years ago
  • Jamie - Teaching in Tanzania
    Zawadi
    11 years ago
  • Jessi
    Trigger Point Injections.
    12 years ago
  • Kelly's Transplant Adventure
    Celebration of Life for Kelly on April 6th
    12 years ago
  • Exercising Diary of a Cyster
    Where everybody knows your name
    12 years ago
  • Linds
    You have "depressing" friends
    12 years ago
  • Lisa
    I miss my husband
    13 years ago
  • Talana
    Major Changes
    13 years ago
  • Kelly
    CF Community Post
    13 years ago
  • Bree
    Spinal Tapopia
    14 years ago
  • Lisa - CF
    Feeling lost
    14 years ago
  • Jenn
  • Aimee

Lynch Syndrome Blog Posts

  • Amazing Family Tree
  • Colon Cancer Screening Visit
  • Colon Cancer Gene Results
  • My Brother is a Free Man!
  • Just Another Manic Monday
  • I think my body hates me
  • The Big H!!!
  • May Hospital Stay
  • Big H Pathology Report

My 101 things in 1001 days List

My list should be completed by July 8, 2011



1. Pay off credit card debt

2. See a show on Broadway

3. Make friends with people I wouldn’t normally be friends with

4. Create a scrapbook

5. Print out all my pictures I have on my computer (that are worthy of printing)

6. Get my computer working again so it reads CDs

7. Take a cooking class

8. Start riding horses again

9. Write a short story

10. Have the short story published

11. Finish at least one book a month (33/33)

12. Take another history class

13. Get a sleep study done for O2

14. Take my jeep “muddin”

15. Take a Caribbean vacation

16. Do the tourist thing in Philly

17. Get a professional massage

18. See my nephew more often

19. Have dinner with my dad and step mom once a month or every 6 weeks

20. Donate all my old books to the library

21. Get all my pants hemmed
22. Get a CF tattoo

23. Do volunteer work

24. Get rid of old junk

25. Start exercising more

26. Make homemade Christmas presents one year for everyone

27. Paint a picture

28. Do saline rinses religiously

29. Delete old files off my computer

30. Go to the movies once a month

31. Smile at a stranger at least once a day

32. Spend a night under the stars

33. Go camping

34. Learn to knit/crochet

35. Go to Disney World

36. Win a Halloween costume contest

37. Make candles from scratch

38. Buy a mountain bike and actually USE it

39. Back up all my blogs

40. Go on a super romantic dinner

41. Display my Lenox crystal animals in something other than a moving box

42. Visit all 50 states (37/50)

43. Spend a day at the spa and not worry about price!

44. Go tubing down the Delaware

45. Learn to drive a wave runner

46. Get a colonoscopy

47. Make chicken noodle soup from scratch

48. Make an edible beef stew

49. Take an Italian class

50. Take a writing class

51. Visit Williamsburg VA and Gettysburg PA

52. Learn to cook things other than chicken and rice

53. Start going back to church

54. Wish on a shooting star

55. Stay off of lung transplant list (active list)

56. Celebrate 30th birthday with HUGE party

57. Send Holiday cards to family and friends

58. Update address book

59. Pick my own strawberries

60. Visit Times Square for Christmas

61. Go to Vegas

62. Start doing Pilates/Yoga again

63. Date more and not be so darn picky about dates

64. Keep a private, paper journal

65. Eat more organic foods

66. Visit grandparents’ graves

67. Take NCIDQ exam...and pass!

68. Become a member of ASID

69. Save money

70. Make a will

71. Do a scavenger hunt

72. Throw a surprise party for a family member or friend

73. Spend an entire weekend in bed/on the sofa (not sick)

74. Recruit more people to be organ donors (2)

75. Go ice skating

76. Go roller skating

77. Play volleyball

78. Stop working so much

79. Spend more time with friends’ kiddies

80. Go to First Friday in Philly

81. Take a flying lesson

82. Actually go Christmas shopping on Black Friday

83. Finish Christmas shopping before December 1st

84. Go on a picnic

85. Learn to ballroom dance

86. Bake homemade banana bread

87. Recycle more

88. Buy more organic products

89. Throw a Halloween party

90. Start Birth Control

91. Get teeth whitened

92. Meet more online friends in person

93. Be more feminine (i.e. more necklaces and earrings) for work

94. Have a yard sale

95. Work on self esteem

96. Watch entire Disney animated movies collection

97. Curse less

98. Plant a tree

99. Do a random act of kindness

100. Meet the man of my dreams

101. Celebrate completing 101 things in 1001 days!


Join my Great Strides team

Join my Great Strides team
The Blue Crew

Facebook Profile

Facebook Profile

My other Creative Blog

  • CrochetCystersCrafts
HealthBlogger Network
Amy Silcox
Cystic Fibrosis Community
Wellsphere

A GREAT support community for those affected by CF

A GREAT support community for those affected by CF

CF Blogroll

Do you have a CF blog? Do you have CF and blog about non-CF stuff? Get added to this site and show off your skills! Cystic Fibrosis Blogroll

Great Site for CF Adults and their Caregivers

  • CFRoundtable

My bestest friend...

My bestest friend...
Maggie!!!! - RIP, I will never forget you 8/28/94 - 12/10/09

This is me and Maggie

This is me and Maggie

Treatment Time

Treatment Time
Because every CFer needs the neb and vest picture!

Blog labels

101 list 20g 65 Red Roses 9-11 anxiety appointments architecture art articles awards Awareness Month babies birthday Birthday Wishes blizzard blog Books Boston Boston Marathon Bombings BRAVO breathe easy Breathless Bride Bree brushstrokes for breath BWH cancer cards Cayston CF CF Awareness CF Benefit CF Book Review CF Films CF friends CFF CFRD challenges Christmas Clinics Colistin colon cancer Compassionate Care contest creative crocheting cyst Cystic Gal D daddy DDF508 death Decals depression depression; psychologist design Devon doctors Dr H. dreams Emily McDowell ER visits etsy exercise family Five Feet Apart flu flu shot flushes food list Frank friends fun fundraising games General goals Great Strides guest blogger gut Hair Halloween HC Reform health heart heartburn help him history holidays honeymoon horses hospital hurricane Sandy Hyperion improvements Inauguration infections insurance interior design IVs Jenn Joshland Kalydeco kidneys Kony 2012 laughter LI life and living Lisa love Lynch Syndrome MAC Maggie Marathon May me medication meet and greet menopause MGH mom mood swings mothers day MRCP MRI new look New Years O2 one year post whipple Organ Donation orkambi pain paint night Pancreas pancreatic cancer Paul Pepe/Gina pH Probe Phillies photos PICC Piper PMDD PodHaler Poetry politics polls ponderings Port prayers prednisone puppy QA questions Readers recipes rehab research and news reunion RIP Rock CF school self image sex shopping sleep spoons theory SSDI Steno Malt studies summer surgery Surviving tattoo thanks Thanksgiving the big H Thyroid TIU Tobi TOBRA transplant update UTI vacation venting Vertex vest videos volunteering wedding weight whipple procedure work YouTube

Blog Archive

  • ►  2019 (1)
    • ►  March (1)
  • ►  2016 (3)
    • ►  January (3)
  • ►  2015 (35)
    • ►  October (2)
    • ►  August (3)
    • ►  July (3)
    • ►  June (2)
    • ►  May (22)
    • ►  April (3)
  • ►  2014 (9)
    • ►  October (1)
    • ►  August (1)
    • ►  May (2)
    • ►  March (1)
    • ►  February (2)
    • ►  January (2)
  • ►  2013 (47)
    • ►  December (4)
    • ►  November (1)
    • ►  September (3)
    • ►  August (1)
    • ►  July (2)
    • ►  June (6)
    • ►  May (7)
    • ►  April (3)
    • ►  March (6)
    • ►  February (9)
    • ►  January (5)
  • ►  2012 (83)
    • ►  December (7)
    • ►  November (6)
    • ►  October (11)
    • ►  September (3)
    • ►  August (8)
    • ►  July (10)
    • ►  June (6)
    • ►  May (8)
    • ►  April (3)
    • ►  March (8)
    • ►  February (9)
    • ►  January (4)
  • ►  2011 (64)
    • ►  December (5)
    • ►  November (4)
    • ►  October (6)
    • ►  September (8)
    • ►  August (5)
    • ►  July (10)
    • ►  June (7)
    • ►  May (5)
    • ►  April (6)
    • ►  March (3)
    • ►  February (1)
    • ►  January (4)
  • ►  2010 (96)
    • ►  December (5)
    • ►  November (10)
    • ►  October (7)
    • ►  September (8)
    • ►  August (7)
    • ►  July (11)
    • ►  June (9)
    • ►  May (9)
    • ►  April (8)
    • ►  March (7)
    • ►  February (7)
    • ►  January (8)
  • ►  2009 (143)
    • ►  December (11)
    • ►  November (14)
    • ►  October (8)
    • ►  September (6)
    • ►  August (13)
    • ►  July (13)
    • ►  June (10)
    • ►  May (11)
    • ►  April (8)
    • ►  March (15)
    • ►  February (17)
    • ►  January (17)
  • ▼  2008 (77)
    • ►  December (18)
    • ▼  November (10)
      • 101 things...what I have done
      • The CF chest...
      • Thanksgiving thanks
      • Stupidity at its best...or worst!
      • Clinic Today
      • Good articles to read
      • 10 year Reunion
      • What you all have been waiting for....My OKC trip
      • An update...
      • Still no internet
    • ►  October (7)
    • ►  September (9)
    • ►  August (24)
    • ►  July (9)

Disclaimer

Since I feel I need to have one I am adding one at the bottom :)

At time I post things that are fun and uplifting, at other times I post things that will make you want to jump off a bridge. But everything I write is my own words, thoughts, desires, feelings etc. If I want to quote something I will make sure to give proper credit.

Lastly, if you don't like what I have to say that is fine. I know plenty of people would rather tear their eyeballs out then read the truth. Just remember that I have the right to delete your sorry ass comments if I feel they are detrimental to me and my friends etc.

So on that note...ENJOY!!!!!!!!!!!!!!!!!!!!!!!

All content written by Amy. Awesome Inc. theme. Powered by Blogger.