On to other news. I was up half the night suffocating!! Dam that TOBI! But by 9 am I was able to fall asleep and sleep well until 11 am. So I am going to try again tonight and tomorrow night and see how it goes. If I still wake up all night then I will call my DR on Monday. I was fine today which is different than most times so I am hoping I just have to deal with the tight-man-sitting-on-my-chest feeling a few nights. That I can deal with since I coughed up some GOOD stuff this morning :) And today I am also having some pain which I am attributing to the TOBI. It feels kinda like glass in my lungs in varied spots. And it isn't constant and there is no rhyme or reason. I have no clue what it is and it is tolerable so no need to call anyone IMO.
Hmm what else. Oh I hung out with my mom all day today. Well I went over around 2. We just watched some TV then went to dinner at Charlie Brown's. So yummy! I had steak and a baked potato and I love salad bars since they can satisfy the CF hunger!!!!
Tis all for now! I will update on how I do with TOBI tomorrow!!!!!
EDITED:
Well obviously I figured out how to change the background and I did!!!! I love the colors woohoo!!!!!!! Hope you all do too!
Hope your feeling better soon! Hugs from Phoenix!
ReplyDeleteAngela
Very cute new background! I just stumbled across all of these blogs of CF patients and families last week and am so glad to find such amazing people! I have two daughters, ages 11 and 8 and my oldest has CF.
ReplyDeleteDang, I missed the black - now I wanna know what it looked like!! The pink and brown is really cute though. Good choice! :P
ReplyDeleteAnd yeah, Tobi bites. I don't have as many problems with it as some others, but my big gripe is that it takes forEVER to do. And it tastes gross.