hi amy. my name is rob. i currently have cf. i know pretty much what you are going threw. im from bloomsburg pa. its ruff dealing with cf an working. like you said must work in order for the ins... sucks. im 37 years old an still feel pretty good. have my days though. well good luck with yourself.......keep your head up an think possitive.
good luck girly. i just got a call from my doc to go into a research study for inhaled cipro!! it's supposed to raise up pft's and dry your lungs out. I cant wait!!!
I'm in week 3 of my Tobi. I agree they need to make a flavor. It has the worst taste. Banana would be good but how about pina colada or some other drink flavor. At least then you could pretend to enjoy it.
Good luck!!!!!
ReplyDeleteEw, TOBI, I swear they should make a better flavour for that stuff! Xx
ReplyDeleteI think they should make it banana flavored :)
ReplyDeleteWhy, do you like bananas? ;)
ReplyDeleteI started TOBI today too. I guess we can make it through the next 28 days together. Hope the drugs work their magic for you!
ReplyDeletehi amy. my name is rob. i currently have cf. i know pretty much what you are going threw. im from bloomsburg pa. its ruff dealing with cf an working. like you said must work in order for the ins... sucks. im 37 years old an still feel pretty good. have my days though. well good luck with yourself.......keep your head up an think possitive.
ReplyDeletegood luck girly. i just got a call from my doc to go into a research study for inhaled cipro!! it's supposed to raise up pft's and dry your lungs out. I cant wait!!!
ReplyDeleteI'm in week 3 of my Tobi. I agree they need to make a flavor. It has the worst taste. Banana would be good but how about pina colada or some other drink flavor. At least then you could pretend to enjoy it.
ReplyDelete