Wednesday, April 29, 2009

Last day of the "drug"

Well this morning I had my very last dose of Cipro/placebo. It's very bittersweet. I am so glad to be done with the nasty powder but I'm also not looking forward to being without a strong abx for the next month or so. Especially since my FEV1 went back down to my baseline...44%. Not a horrific number but certainly not as good as the 50% I was at 2 weeks ago.

That is my normal course though when I am on IVs and stop. A couple of weeks after stopping I slide right back to my baseline. I might get to 48-50% right after I stop then boom...back down.

So while it's kind of disappointing it isn't a total surprise to me. I'm still better off than the 38% I was at when I started.

I basically chalked this whole thing up to a round of IVs since most likely if I hadn't received the drug (which is not official BTW, but very likely considering my success with it) I would have ended up on IVs at some point soon. I could feel myself getting sick. So now I am not sick and feel pretty normal. My normal sick if you will LOL.

I still have 2 more visits left to monitor me and how I do after stopping.

Everything else was good...weight still 119 and blood pressure still normal.

AND Saturday marks ONE YEAR since I was in the hospital. Not bad considering last year it was 3 times in 6 months!!!! So not only will I be celebrating my nephew's birthday I will celebrate being "healthy" for a year!!!! =D

<3

10 comments:

  1. Congrats on 1 year out of the clink. As you said at least your numbers were still up from when you started the trial.

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  2. See what having heat in the winter will do for ya?! 1 year, lock-up free! I'm so glad you moved!! :D

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  3. pffft who needs heat ;)

    Thanks guys :)

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  4. Awesome job Amy! My One year out was last month. Lets keep it up :)

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  5. Woo Hoo yay for feeling good!!!

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  6. Nice work on being out of the slammer for a year. Very cool!

    Can't wait to see the Cipro results... :)

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  7. Congrats on staying out of club med for 1 year...that's awesome! I'll be praying you continue to feel good for a LONG time!!

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  8. What a good post, and so excited to hear about your 1yr anniv. Congrats!

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  9. GOOD JOB! 1 year out of hosp, eh? YOU CHAMP! You celebrate one year out, i celebrate (most likely) going in!

    Keep up the great work! Sorry about the crap baseline: never fun!

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