Tuesday, October 5, 2010

Follow Up Clinic

Today's clinic was much better than 2 weeks ago.  The Cipro and Cayston are doing their thing it seems.  I am still junky and somewhat SOB, but at least I can feel it getting better.  My numbers have all increased, except my weight which is down slightly but no biggie.

These are my numbers from 2 weeks ago:

PRE: (Penn)

FVC - 1.92L 56%
FEV1 - 1.06L 36% (33%)
FEV1/FVC - 55%
FEF25-75 - .43L 12%

POST: (Penn)

FVC - 2.16L 63%

FEV1 - 1.20L 41% (37%)
FEV1/FVC - 56%
FEF25-75 - .51L 15%

And todays:

FVC - 2.23L 65%
FEV1 - 1.31L 44% (41%)
FEV1/FVC - 59%
FEF25-75 - .59L 17%

I still have 3 weeks left of the Cayston so I expect my numbers to go even higher.  Though I am not scheduled to go back until December 7th.

I was also lucky enough to have an exercise study done while there.  I wish I had known about it prior to the appointment since I came in my imitation Ugh(?) boots and a sweater.  However, I "passed" the test and do require O2 with exercise.  We started off slow on the treadmill and I worked my way.  Around 5 minutes she put the O2 on me since I was down to 90%.  She started me off on 1L and worked up based on how my numbers and breathing was.  I ended around 3L and she said that should be good for me but if I am feeling really SOB I can always check and increase it.  I like having it documented now though so that if my insurance were to ever put up a fight they can see proof I need O2.  Now I just need to get that sleep study they keep telling me about...

That is pretty much it for the CF front right now.


  1. My PFT's are almost identical right now to yours! I just started Cayston this month so I am hoping mine go up as well! Keep up the good work! xoxo

  2. Way to go Cyster! Don't you just LOVE Cayston!!! Mr. Cayston and I have become very close this month ;)