Follow Up Clinic

Today's clinic was much better than 2 weeks ago.  The Cipro and Cayston are doing their thing it seems.  I am still junky and somewhat SOB, but at least I can feel it getting better.  My numbers have all increased, except my weight which is down slightly but no biggie.


These are my numbers from 2 weeks ago:


PRE: (Penn)

FVC - 1.92L 56%
FEV1 - 1.06L 36% (33%)
FEV1/FVC - 55%
FEF25-75 - .43L 12%

POST: (Penn)

FVC - 2.16L 63%

FEV1 - 1.20L 41% (37%)

FEV1/FVC - 56%

FEF25-75 - .51L 15%

And todays:

FVC - 2.23L 65%
FEV1 - 1.31L 44% (41%)
FEV1/FVC - 59%
FEF25-75 - .59L 17%

I still have 3 weeks left of the Cayston so I expect my numbers to go even higher.  Though I am not scheduled to go back until December 7th.

I was also lucky enough to have an exercise study done while there.  I wish I had known about it prior to the appointment since I came in my imitation Ugh(?) boots and a sweater.  However, I "passed" the test and do require O2 with exercise.  We started off slow on the treadmill and I worked my way.  Around 5 minutes she put the O2 on me since I was down to 90%.  She started me off on 1L and worked up based on how my numbers and breathing was.  I ended around 3L and she said that should be good for me but if I am feeling really SOB I can always check and increase it.  I like having it documented now though so that if my insurance were to ever put up a fight they can see proof I need O2.  Now I just need to get that sleep study they keep telling me about...

That is pretty much it for the CF front right now.