Well I didn't get the 24 hour pH probe done. I freaked out. I started crying as soon as I walked into the room and could not stop. He sprayed the numbing stuff into my mouth and nose and I about lost it completely. I couldn't go through with it. I was a mess. There was no way anything was being shoved in my nose. And they can't give you anything to calm you unless it is pre-ordered by your doctor.
I had to have 2 tests done (that part was a surprise). One was a quick 10 minute test much like the Barium Swallow test. However, the tube is GINORMOUS! It was the size of a dam worm! OK maybe not quite that large but pretty dam close. Its safe to say it was larger than the NG tube I tried to have placed. I don't care if it was only going in for 10 minutes. I knew for sure I would freak out.
The probe was a MUCH smaller copper colored tube attached to a device that would have been strapped to my waist. I probably could have handled that being placed, but I was not sure how I would be once the numbing wore off and I was too afraid I would have a panic attack and rip it out.
I say this because I have a panic attack if I put a dress on and it gets stuck. Seriously. Panic attacks from a dress. Why would I even consider this test?
Luckily there is another test that can be done in its place called the BRAVO test. This one you are knocked out for the placement and you don't have to go back to have anything removed. Its a small device glued to your stomach/esophagus that transmits information back. Ummm HELLO, why was I not informed about this before?!?! Friends had mentioned the test on facebook after I had this probe booked. So I was aware I could have it done, if this didn't work out. I don't know why they don't give you that option. Its ridiculous. Instead let's have people be uncomfortable for at least 24 hours and even more so since you can not take ANY heartburn medications 5 days prior.
A wasted trip down to BWH, but oh well. Now to go call the transplant team and schedule that BRAVO.....
I called my transplant team and they don't like doing the BRAVO test. So they are going to discuss it and decide. I am NOT doing the probe so they either have me do this or I go somewhere else that doesn't require it. And quite frankly, I know of a couple of patients who were transplanted here and didn't have it done because they were too sick to wait. So ha!