They are going to try to take her off the vent so that she will be more comfortable.
Please continue to keep her and her family in your prayers.
Katy posted this on the CF site. It is from on of Jenn's good friends Katie:
they took her off of the meds that were paralyzing her yesterday afternoon. they are hopeful that when these start to wear off (could be hours, could be a week), she will be able to start breating on her own and they will be able to remove the respirator. there is a chance that this will give her a chance to become a little responsive, whether that means opening her eyes or being able to squeeze someone's hand. hearing that kind of got our hopes up but they were very clear that this does not in any way change the prognosis and that they are doing this to help get her more comfortable because the vent is so invasive.
she had an ekg on tuesday that revealed that one side of her heart was okay but the other side was significantly damaged. because she is sedated, they still don't know if or how much saturday's events might have damaged her brain. they have increased her pain meds a few more times and they are closely monitoring her and increasing it as much as she needs it. we were able to see her last night (i don't think we'll be going back again) and she looked better than she did on tuesday - more like jenn.
andy and joann are doing the best they can and having a tough time. her mom hasn't left her side and her dad is there 12 hours a day and taking care of both of them. one of jenn's wishes was to have her body donated to cf research and they have had all the folks at the hospital digging up information about how to do this. dr p has been coming to see her every morning and is helping them make sure they can do it through the cf foundation so they can make sure that she has the best chances of helping other cf kids. kind of depressing to think about, but it's comforting that they are doing what she really wanted and helping others to not have to go through this.
she had an ekg on tuesday that revealed that one side of her heart was okay but the other side was significantly damaged. because she is sedated, they still don't know if or how much saturday's events might have damaged her brain. they have increased her pain meds a few more times and they are closely monitoring her and increasing it as much as she needs it. we were able to see her last night (i don't think we'll be going back again) and she looked better than she did on tuesday - more like jenn.
andy and joann are doing the best they can and having a tough time. her mom hasn't left her side and her dad is there 12 hours a day and taking care of both of them. one of jenn's wishes was to have her body donated to cf research and they have had all the folks at the hospital digging up information about how to do this. dr p has been coming to see her every morning and is helping them make sure they can do it through the cf foundation so they can make sure that she has the best chances of helping other cf kids. kind of depressing to think about, but it's comforting that they are doing what she really wanted and helping others to not have to go through this.
Keeping Jenn and her family in my thoughts and prayers.
ReplyDeleteStacey
I'm so sorry about your friend. Please pass on my sympathies to her family and let them know how grateful I am. Because of Jenn, my son Seamus will have a chance at a long and healthy life.
ReplyDeleteThanks for the comment :D
ReplyDeleteAnd I hope Jenn is OK... Xx