Wednesday, July 25, 2012

Roller Coaster....of Numbers

Another fun filled clinic appointment done and over with.

As per my usual course after stopping IVs I am down 6% with my FEV1.  I was 1.28L or 44% on May 23rd and I am 1.10L or 38% today.  Normal stuff and I don't sound or feel bad.  Maybe some more mucus, maybe some more SOBness, but nothing to ring any alarm bells.  I am going to start a 2 week course of Cipro tomorrow and see if I feel any better.  Either way, I will be scheduling an admission for the beginning of September so I will be all hunky dory for our wedding and honeymoon!

The next 2 weeks will be key however, as next week I am in PA with E for 8 whole days!  That is the longest time P and I have been away from each other since we started dating!  And the week after that I have an institute for school which is M-F 8:30am to 4:30pm.  Rough stuff with little time to sleep.  But then I get a full week after that with no kids so I can sleep all that time if I so desire.

Here is a picture of my numbers over the last year and a half:

You can plainly see the ones when I am on IVs and when I need IVs.  Up, down, up, down.  It is a roller coaster of numbers, which is highly ironic considering I HATE roller coasters!

I told her about my Spinning class and my need for O2.  She recommended it most definitely if I continue.  If I decide to modify and not push myself so hard then I don't need to wear it.  But if I want to get the most of it then I should push myself right?

So a relatively decent appointment.  I go back the Wednesday after Labor Day and we see if the Cipro helped any and also schedule that IV clean out.

2 comments:

  1. hey amy, numbers are super normal to go down after iv's. i understand the use of o2 for spinning, i use my o2 on the eliptical and it's so much easier. i also have a plastic bag next to me so i can cough in. it's gross but better than using a million pieces of tissues. goodluck with the cipro and i hope your numbers go up. Oh, since moving up here to northern florida my pft's have gone up with no iv's just working out! from 29%-33%!! it's tough but it works. :)

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  2. Go back and read my post on how cool it is to wear O2 ;)

    Sucks your FEV1 is down, but good that you're starting cipro.

    Enjoy your time in PA!

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