I went to
Well we met his co-worker for lunch and then I came back up to the room to lay down. I was hoping to get some more sleep. Didn’t happen. I laid there for the whole afternoon, nauseous, with no sleep. We ended up just staying in bed all night, which was fine by me. But I felt horrible since I was so sick to my stomach. It did feel better by the end of the night which I was happy about. I was able to sleep well. This morning I felt great too, I slept well, no nausea, happy. We packed, showered, nebbed and then left to go downstairs to eat
I made it home with no incidents. I was munching on pretzels so hopefully that helped settle my stomach. I did have to pull over and sleep for a while because at one point I was falling asleep at the wheel. It was scary!! And of course it was right where there were NO rest stops! I did find one eventually and slept for an hour and a half. Woke up still exhausted but my stomach was pretty good. And here I sit still kinda iffy but no where near where I was this morning! And I am still super tired.
I was so mad about this all though. I had planned to meet up with Jenn and Tina. Tina and I were going to do dinner and then I was going to go to Jenn’s for a candle party. Well thankfully Shawn’s doctors didn’t want Tina meeting me so I didn’t feel bad about canceling on her. But I was so bummed to cancel on Jenn. I wanted to meet both these women so bad! Plus I was dying to hear all about Shawn’s transplant from Tina! It just sucks because instead of enjoying my 36 hours up in
I am also going to look into a portable O2 concentrator that I can buy on my own. Insurance won’t pay for a portable one and my big one is way too large to take places with me.
But on to some fabulous news!!! I called my Dr on Friday to find out if I could do the study for inhaled Cipro. I left a message with the NP and told her to call me back. Well about 15 minutes later my phone rings and it is the director of the CF program for clinical studies at