Sunday, December 14, 2008

Repeat of Friday...WTF?

Yep just as the title says, today was a repeat of friday.  I did my TOBI this morning and lo and behold I sat on the floor at the twins birthday party because it was the most comfortable for me and I was able to stretch my body out a bit to let more air in.  

Fuck it I am DONE with TOBI!  Let my lungs turn to total shit I don't care.  It can't be any worse than it feels now.  Ok I lie I am sure it can feel worse but God almighty at least I won't be doing it to myself.  

I will call my clinic tomorrow and tell them I am done with it and we need to find a better way to combat PA.  I can't deal with it anymore.

<3
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5 comments:

  1. AnonymousDecember 14, 2008 at 11:27 PM

    :(

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  2. TaraDecember 15, 2008 at 10:19 AM

    I had to quit TOBI in January. It made my PFTs plummet every time I had a round. Ask your doctor about off label use for Aztreonam IV, Ceftaz IV and/or Merropenum IV. All three work wonders for me and keep me off IVs. If they want to cal my doctor, let me know!

    ReplyDelete
  3. Just meDecember 15, 2008 at 3:20 PM

    Ugh! Sorry you are being attacked by your medicine. I hope there are some alternatives for you.


    Stacey

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  4. ChristyDecember 15, 2008 at 6:48 PM

    Grrrrr.. I hated TOBI! Glad there are some other abx out there to try.

    ReplyDelete
  5. AnonymousDecember 16, 2008 at 10:42 AM

    So sorry. I don't like Tobi either.

    ReplyDelete

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